Membership » Overview
CAEAR Coalition: The United Voice for the Ryan White Program
The Communities Advocating Emergency AIDS Relief (CAEAR) Coalition is a national membership organization which advocates for federal policy, legislation, regulations, and appropriations to meet the care, treatment, support, and prevention needs of people living with HIV/AIDS and the organizations that serve them, focusing on health care reform and the evolving role of the Ryan White Program.
The CAEAR Coalition is the oldest national HIV/AIDS organization representing the interests of people living with HIV/AIDS, community-based service providers, and the public health grantees of the Ryan White Care Act. CAEAR targets its advocacy on behalf of the Part A eligible metropolitan areas and the community health centers directly funded through Ryan White Part C.
Fighting for Increased Appropriations in the Face of Rising Caseloads
During each federal funding cycle, the CAEAR Coalition advocates on behalf of people living with HIV/AIDS for adequate federal funding for the Ryan White Program. Over the last 25 years, CAEAR Coalition has been instrumental in securing appropriation increases. It has helped to increase Part A appropriations from $88 million to over $655 million and Part C appropriations from $76 million to over $205 million.
Through re-granting of Ryan White funds from Part A grantees and direct funding for Part C agencies, the Ryan White Program provides monetary awards to over 5,000 AIDS Services Organizations (ASOs) in all 50 states. CAEAR Coalition has successfully lobbied to add service categories to ensure comprehensive care for people living with HIV/AIDS, making the Ryan White Program unique among federal disease-specific funding programs.
2019 Program Agenda
- Advocate for federal policy, legislation, regulations, and appropriations to meet the care, treatment, support, and prevention needs of people living with HIV/AIDS and the organizations that serve them.
- Convene Planning Council calls to provide a venue to understand councils’ concerns and bring those concerns to the attention of HRSA and HAB.
- Meet quarterly with HRSA and HAB to ensure clear communications and to express the community’s concerns and find solutions to those concerns.
- Implement an outreach plan to communicate with all Part A grantees.
- Serve as an ombudsman for consumers of the Ryan White Program.
A Leader in Ryan White Reauthorization and Health Care Reform
During Congressional reauthorization of the Ryan White CARE Act, the CAEAR Coalition works with Congress to ensure that the program continues to meet the needs of individuals and communities impacted by HIV/AIDS. Since the 1990s, the CAEAR Coalition has led the successful efforts to reauthorize the act four times, often taking the lead in defining terms for the reauthorizations and building community consensus to speak to Congress with one voice. Key components of its reauthorization efforts include.
- Membership-driven development of policy recommendations
- Comprehensive analysis of Ryan White funding
- Convening of national partners to form the Ryan White Legislative Group to build a unified voice on the Hill for reauthorization
- Development of reauthorization bill language
Engagement of key Hill staff
- Detailed response to draft legislation
- Constituent visits to key members of Congress
- Advocacy to ensure provisions are enacted fairly and with a minimum disruption to care
- Professional government affairs representation in Washington
- A seat at the table when priorities for Ryan White Program advocacy are set
- Participation in quarterly Capitol Hill advocacy visits with members of Congress
- Meetings with Administration officials at the White House, Department of Health &
Human Services (HHS), and Health Resources and Services Administration (HRSA)
- Up-to-date Ryan White Program information through action alerts and updates
- Representation of Ryan White Program interests in other HIV/AIDS coalitions such as the Federal AIDS Policy Partnership
- The opportunity to network and receive peer TA from counterparts across the country
Part A Grantees
Part A Planning Councils
Part A & Part B Sub-Grantees
Part C Grantees
Corporate and Industry Affiliates
CAEAR Coalition organizational memberships are divided into categories: Part A Grantee; Part A Planning Councils; Part A & B Sub-Grantee/Part C Grantee; Corporate and Industry Affiliates; and Non-Aligned Consumers. Dues are calculated based on an agency’s Ryan White award and its overall agency budget. CAEAR Coalition Dues Chart. Annual dues for planning councils is $500; Corporate and Industry Affiliates is $15,000; and non-aligned consumers is $100.
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